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                            BIOGRAPHY   CHRONOLOGY   CENTENARY EVENTS   JRF MAIN WEBSITE 
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Disability

A selection of relevant JRF Findings. For more summaries of JRF work,
visit the Findings section of our website.

joint planning – a selection of JRF Findings

111 Crossing the housing and care divide
This evaluation draw the lessons and conclusions from the Crossing the Housing and Care Divide Programme, designed to highlight how housing can play a role at the centre of community care services.
January
2001
3 Making housing and community care work
This research suggests that housing and community care policies could be more imaginative and closely integrated with general plans for improving, extending and making most effective use of the local housing stock.
June
1997
SC92 Joint planning for housing and community care
A study of the housing strategies and the linked community care plans of 120 local authorities.
March
1997
H168 Housing choices and community care
A study carried out in Hampshire by Judith Hudson, Lynn Watson and Graham Allan of the University of Southampton looked at the factors influencing the housing preferences of people with extra support needs, and the channels people use to gain access to suitable accommodation and support.
February
1996
H135 Housing management, community care and CCT
This study discovered that there was considerable disagreement over the extent to which housing managers could or should play a role in meeting community care objectives, and in particular whether this should involve a support or welfare function.
January
1995
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equipment and adaptations – a selection of JRF Findings

811 The effectiveness of housing adaptations
This analysis concludes that spending on adaptations appears to be a highly effective use of public resources, although in some cases policies intended to save money resulted in major waste.
August
2001
H186 Trends in funding adaptations
The growth in demand for housing adaptations in recent years is a measure of the success of community care but has received no clear budget provision. Funding is complicated because of the intertwining of health, housing and social services responsibilities.
July
1996
H123 Adaptations for disability
The system for assisting disabled people to adapt their homes is complex and the standard of service people receive depends on where they live, according to this study. However, in spite of difficulties of staffing, funding and implementation, many authorities provide examples of good practice which could be copied in other areas.
September
1994
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incomes– a selection of JRF Findings

N23 Social exclusion and the onset of disability
This study examines who is most at risk of becoming disabled, how it affects their income and the impact on the rest of the family.
November
2003
060 Enduring economic exclusion: disabled people, income and work
This study reviews the impact of government policies over the last twenty years to promote employment opportunities for disabled people.
October
2000
7118 Personal assistance users and work
This study found that severely disabled people who want to work can find they are better off on benefits because of means-testing that reduces public funding for personal assistance as their earnings increase.
July
1998
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employment rates – a selection of JRF Findings

060 Enduring economic exclusion: disabled people, income and work
This study reviews the impact of government policies over the last twenty years to promote employment opportunities for disabled people.
October
2000
758 Disabled people and employment: new issues for research and practice
This review of research and development initiatives aimed at helping disabled people find and keep jobs finds that - despite huge numbers of projects and studies in this areas - there are still many gaps in knowledge and emerging issues for research and practice.
July
1998
7118 Personal assistance users and work
This study found that severely disabled people who want to work can find they are better off on benefits because of means-testing that reduces public funding for personal assistance as their earnings increase.
July
1998
313 Multiple disadvantage in employment
This detailed analysis of more than half a million people looks at the effect of combinations of disadvantage on their ability to get work.
March
2003
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managing work – a selection of JRF Findings

793 How disabled people manage in the workplace
This study explored how disabled people get by in the workplace and looked at the nature of the support they require and receive.
July
2003
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supported employment – a selection of JRF Findings

728 Supported living and supported employment: opening up opportunities to people with learning difficulties
This review of JRF research identifies the barriers facing people with learning difficulties and suggests possible solutions which would make inclusion of this highly marginalised group more likely.
July
1998
SC86 Supported employment for people with learning difficulties
The report of a two-year study of six supported employment agencies operating in Liverpool.
May
1996
N20 A policy framework for supported employment
This review, by The Policy Consortium on Supported Employment, examines the challenges facing the specialist supported employment sector and possible policy solutions.
November
2000
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parents of disabled children – a selection of JRF Findings

231 The financial implications for parents of the death of a child
Looking at 17 families, this is the first in-depth study of the impact of the death of a disabled child on a family’s financial circumstances.
February
2001
N30 Information to families with disabled children
This project explores the critieria by which parents of disabled children judge the quality of information on offer to them and their ideas of good practice in this area.
November
2000
748 The cost of childhood disability
This study brought together parents of severely disabled children to establish what they felt to be the minimum essential costs of bringing up their child. The resulting budget standards estimated costs at least three times more than the amount required to bring up a child without a disability, established in a study using similar methodology.
July
1998
538 Combining work and care: working parents of disabled children
This detailed study of 40 families who are both working and caring for disabled children concludes that there is an urgent need for co-ordination between employers and service providers in the community if such families are successfully to combine work and care.
May
1998
N79 Supporting disabled children and their families
This draws together the main findings from the first five years of a JRF programme of research concerning disabled children and their families.
November
1999
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housing – a selection of JRF Findings

n62 Good practice in housing disabled children and their families
This study draws out a number of underlying principles and themes that are important in meeting the housing needs of this group.
November
2002
N82 Housing and urban experiences of visually impaired children
This study spoke to 44 visually impaired children about the difficulties they had finding their way around their homes and neighbourhoods and how they and their families overcame these.
November
2002
N72 The housing needs of disabled children: the national evidence
This survey of 3,000 parents of severely disabled children provides, for the first time, data at a national level on the housing needs of disabled children and their families.
November
2002
670 Improving housing services for disabled children and their families
This research reports on a series of ’roadshows’ involving key practitioners from housing, social services and health authorities, held to identify problems providing appropriate housing for such families and possible solutions.
June
2000
018 Housing, disabled children and their families
This in-depth study is the first to examine the impact of housing on the lives of disabled children and their families and finds that unsuitable housing is adding to the strains they experience.
October
1998
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severly disabled children – a selection of JRF Findings

631 The impact of childhood disability on family life
This study describes the spending patterns of parents of severely disabled children and considers some of the adjustments they need to make to their family lives.
June
2001
960 Recruiting and supporting short-break carers for children who are considered ‘hard to place’
This study investigated why short-break carers provided breaks for ‘hard to place children, and looked at their recruitment, assessment, training and support.
September
2000
748 The cost of childhood disability
This study brought together parents of severely disabled children to establish what they felt to be the minimum essential costs of bringing up their child. The resulting budget standards estimated costs at least three times more than the amount required to bring up a child without a disability, established in a study using similar methodology.
July
1998
539 Minority ethnic families caring for a severely disabled child
Based on interviews with 600 parents of severely disabled children from minority ethnic groups, the study found that these families experience even greater disadvantage and difficulties in caring for a severely disabled child than their white counterparts.
May
1999
018 Housing, disabled children and their families
This in-depth study is the first to examine the impact of housing on the lives of disabled children and their families and finds that unsuitable housing is adding to the strains they experience.
October
1998
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getting a voice – a selection of JRF Findings

813 An evaluation of a young disabled people’s peer mentoring/support project
This project developed a range of activities to help young disabled people develop their confidence and skills as they move into independent adulthood.
August
2003
732 Becoming adult: young disabled people speak
This study draws out the factors that enable and support young disabled people to move into independent adulthood.
July
2002
741 Consulting with disabled children and young people
This overview highlights the innovative approaches of two projects aimed at supporting disabled young people to express their views and providing communication training for practitioners.
July
2001
261 Creating enabling communication environments for children with autism and minimal or no speech
This study explores this group of children’s communication capabilities and the ways in which schools can help or hinder them in their attempts to become spontaneous communicators.
February
2001
340 The views of young black disabled people on independent living
Interviews with 44 young black disabled people explored their experiences of independent living; it found the majority actively working towards specific personal goals, but encountering some obstacles to achieving the control and choice which most saw as central to their concept of ’independent living’.
March
2000
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disabled parents – a selection of JRF Findings

963 Supporting disabled adults in their parenting role
This work reports on the findings of the JRF Task Force on Supporting Disabled Adults in their Parenting Role.
September
2003
422 Supporting disabled adults in their parenting role
This survey explores what policies social services have in place for providing support to parents with physical and sensory impairments and/or learning difficulties and how effective these are.
April
2002
412 The strengths and needs of black families in which young people have caring responsibilities
This study investigates the experiences of needs of black young people caring for disabled or ill family members and their access to services.
April
2002
630 Young carers’ transitions into adulthood
This examination of the experiences of 60 young people caring for a parent with a long-term illness or disability concludes that young people who take on inappropriate caring responsibilities can be affected not only during childhood, but also as they become adults.
June
2000
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move into adulthood – a selection of JRF Findings

N42 Young disabled people moving into adulthood in Scotland
This Foundations reviews policy, practice and research in Scotland regarding young disabled people as they become adults.
November
2002
712 Disabled teenagers’ experiences of access to inclusive leisure
This project consulted with over 100 teenagers to find out about their access to leisure services, activities and pastimes.
July
2002
732 Becoming adult: young disabled people speak
This study draws out the factors that enable and support young disabled people to move into independent adulthood.
July
2002
512 Young disabled people moving into adulthood
This review draws on a range of projects to identify the key barriers that many young disabled face as they start leading adult lives.
June
2002
919 Transition to adulthood for young disabled people with ´complex health and support needs´
This study highlights the difficulties young disabled people face in getting the health and social services they require as they grow into adulthood.
September
1999
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minority ethnic communities – a selection of JRF Findings

962 Disabled people in refugee and asylum-seeking communities in Britain
This research generates data on the numbers and social characteristics of disabled refugees and asylum-seekers and looks at their experiences, together with those of service providers.
September
2002
742 South Asian young disabled people and their families
This study looks at how this group’s everyday experiences might feed into the services that affect them.
July
2002
752 Users’ views of community care for Asian disabled people
This study collected the views of 28 Asian disabled people on what would improve services.
July
2002
D61 Involving black disabled people in shaping services
This research explores one organisation’s experience of involving black disabled people in developing more appropriate and responsive services.
December
2001
539 Minority ethnic families caring for a severely disabled child
Based on interviews with 600 parents of severely disabled children from minority ethnic groups, the study found that these families experience even greater disadvantage and difficulties in caring for a severely disabled child than their white counterparts.
May
1999
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mental health issues – a selection of JRF Findings

352 Mental health advocacy for black and minority ethnic users and carers
This study explores the needs for advocacy services for black and ethnic minority mental health users in two NHS areas.
March
2002
488 The experiences of mental health service users as mental health professionals
This study examined the experiences of mental health professionals who have also used mental health services. Interviewees reported encountering discrimination, even though they felt their personal experiences added value to their work.
April
1998
SC97 Involving users and carers in the care programme approach in mental health
This development project worked with a local social services department to set up an integrated care programme approach for mental health services users. The project found that users were positive about this approach although some professionals were ambivalent and GPs had little knowledge of the system.
October
1997
341 Perceptions and experiences of counselling services among Asian people
Based on the accounts of Asian people, this study evaluates the accessibility and appropriateness of counselling provision for people from minority ethnic communities in the voluntary sector.
March
2001
948 Supporting people with mental health problems
This evaluation concludes that an interagency initiative – Home-Link – offering permanent housing and low-level, practical support provides a successful model for supporting people with mental health problems in the community.
September
1998
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their own views on the issues – a selection of JRF Findings

611 Getting older people’s views on quality home care services
This study, involving 143 older people, explored their ideas about what makes a quality home care service and how their views about this can be regularly heard.
June
2001
431 Piloting choice and control for older people: an evaluation
This study evaluates a scheme piloting new ways of delivering services to older people, drawing out the lessons for both direct payments for older people and, more generally, increasing older people’s choice and control over services.
April
2001
639 Developing a preventive approach with older people
This research examined what steps local authorities are taking to help older people maintain their independence for as long as possible.
June
1999
SC59 Involving older people in community care planning
This report from the Social Policy Research Unit reviews practical initiatives seeking to involve older people in the planning of community care.
November
1994
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direct payments – a selection of JRF Findings

553 Direct payments for young disabled people
This study examines the issues related to 16- and 17-year-olds managing direct payments and what information and services exist in this area.
May
2003
592 A user-controlled Best Value Review of direct payments
This draws out the lessons from an innovative project demonstrating how service users can play a more central role in service reviews.
May
2002
N60 Implementing direct payments
This research evaluates a pilot scheme introducing direct payments in a largely rural county.
November
2000
430 Implementation of the Community Care (Direct Payments) Act
This review of local authority practice regarding the implementation of direct payments schemes sought to fill gaps in our understanding of how such schemes are managed.
April
2000
649 People with learning difficulties and their access to direct payments schemes
This study found that direct payments had helped people gain confidence, control and new skills, as well as enabling more individualised packages of support.
June
1999
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evaluate and plan services – a selection of JRF Findings

683 Issues raised by users on the future of welfare, rights and support
This action research project looked at the issues raised by users and how users are being involved in shaping the support they receive.
June
2003
673 Social service users’ own definitions of quality outcomes
This project looked at the application of on-going work about what service users mean by ‘user-defined outcomes’.
June
2003
592 A user-controlled Best Value Review of direct payments
This draws out the lessons from an innovative project demonstrating how service users can play a more central role in service reviews.
May
2002
SC4 Increasing user control in social services: The value of the service brokerage model
A number of schemes have been set up in the UK with the aim of giving more control to people who require social care at home, by enabling them to purchase their own services. At the time of this report, national policy changes were being considered which would support this kind of arrangement. Meanwhile there had been growing interest in service brokerage, a system developed with the same aim, but by parents of disabled people in Canada. This report reviews the service brokerage model and its possible value for services in this country.
May
1995
SC3 Developing user- and carer-centred community care
Sustained initiatives to involve users and carers across the range of community care activities can transform care provision - but only if there is sufficient investment from both sides. Four local authority case-study sites reported significant changes in the way community care was planned, managed and delivered.
March
1995
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work with people with learning difficulties – a selection of JRF Findings

912 Promoting the involvement of people with learning difficulties in staff recruitment
This study evaluates a training and development programme working with five organisations to involve people with learning difficulties in this area.
September
2002
021 Demonstrating control of decisions by adults with learning difficulties who have high support needs
This research investigates how this group can be supported to make choices and to be in control of their own lives.
October
2001
831 Creating more choice for people with learning difficulties
This project, by a team of people with learning difficulties, explored how people with learning difficulties were being involved in planning the services that affect them.
August
2001
029 Adults with learning difficulties’ involvement in health care decision-making
This study finds that many people with learning difficulties have little involvement in making decisions about their own health care, with health professionals tending to rely on carers to make decisions.
October
1999
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